Happy 2024! I am writing this on January 2. Surprise, surprise, life with two small kids gets pretty busy around the holidays. With the additional end-of-year required work for our small business that Dave and I own, this is the first we are getting around to this letter. We don’t think we will be writing …
Author Archives: Dave
1 Year
It’s been exactly 1 year since Kate’s transplant. Wow, what a world of change we’ve seen. Recently, we’ve been looking at these journal updates from last year and looking at photos and reflecting on our time in the hospital last year. Wow, what a ton of emotions. Kate’s doing awesome. She’s down to just her …
Another Little Celebration!
It’s time for a quick update. We’ve been pretty quiet on updates lately. That’s a good thing! Kate has been doing awesome and last week at Kate’s latest clinic visit we hit a great milestone! Kate is finally down to her long-term maintenance medications! It’s been 11 months since her transplant and it’s been a …
I think it’s time for an update!
Hi friends and family! Sorry for how long it’s been since our last update. Early on, Kate’s Dr shared that you hear the bad stories posted online but not the good ones because people get busy with life. We can relate. Here’s an update of where we’re at currently. We are now less than a …
Back to the Hospital We Go
So what happened the other week? So much suspense! Sorry…in some ways life seems even more crazy than when we were in the hospital. We’ll take it though. Here’s the story of our hospital overnight February 16th to 17th . So Kate has had a long-term IV (called a Broviac) in her chest since she …
Grrr. Back in
Woo hoo! Back in the hospital tonight! (sarcasm) Kate’s broviac iv line broke. Observation tonight then we figure out a plan tomorrow. Likely need to put a new one in. Grrr. Hopefully a quick process. More soon.
Yay For Being Out!
Wow what a time! It’s been two weeks since we got out of the hospital on Friday, January 29th. We were in for 162 days. It was 47 days post-transplant and 31 days after Kate’s last open-heart surgery. Sorry for the delay in updating everyone but it’s taken a long while to feel like we …
Discharge Day!?!
Wow! Things move fast. As long as all the medications show up today, we are going home today! Holy Cow! It’s day 162 inpatient. Monday we were still officially ICU status. Kate it running around like a normal toddler, she’s still weak and on tons of meds (see below) and we still have IV lines …
Kate’s Personality is Coming Back!
It’s been 158 days for this hospital stay, 43 days since transplant, and 27 days since the RVAD came out. Updates have been slower lately as Kate has been getting stronger and better and she’s keeping us super busy! Kate is doing much better lately. This past weekend she was regularly standing up in her …
Still Taking Small Steps
We are 147 days into our hospital stay. It’s been 32 days since transplant and 16 days since the RVAD came out. Kate’s making progress. It’s slow progress but we’ll take it. We were down to 3 IV pumps at one point. We had to back-track a bit due to Kate’s fluid balance still being …