Today’s update is going to be a bit shorter and to the point. Yesterday, Thursday, we got the news about the next steps. Currently we are ramping up the Sildenafil (Viagra), trying to see if that will have an effect. On Saturday or Sunday we will have another echo to see if that has had …
Category Archives: Latest News
Back at the hospital
Well you hopefully read Monday’s update. We had a heart catheterization. yesterday to gather more data and try and determine next steps for to deal with Kate’s hart issues. The cath. went well and they got lots of data. The aortic arch they repaired back in May during our original visit is doing great with …
No news is good news….and now, news
It’s been a little over 2 months since our last update, just after we got out of the hospital. It’s been a fun whirl-whirl adventure in the world of baby! Today we are back in the hospital, but before we get to that, let’s catch up on life. Since we left the hospital, we’ve been …
Homeward Bound!
Hi again. Sorry for the delay in posting this. It’s been a whirl-wind few days. Saturday, May 18th, one month and one day after Kate came into our lives, she finally got to leave the hospital! It’s amazing how much difference we’ve seen in the short period since the surgery. So much more energy and …
Lots of progress
So the last update was the day of surgery. Things have been busy since then and are definitely looking up! We’re 4 days post surgery now and we’ve been moved twice, each time to less intensive care areas! We are totally off oxygen now and totally off pain meds. The pulmonary hypertension seems to have …
Surgery Day
Well today was our first big surgery day. Kate had surgery to repair a coarctation of the aorta (basically a narrowing of the artery that supplies blood to the entire body). Today’s surgery was to remove the narrowing to try and improve blood flow. This morning they sedated Kate, put her on a breathing tube …
We have a next step!
It’s time for another update! I swear I am trying to help Audrey find time to share her thoughts but today you get my update again! Today’s update is quick. Yesterday Kate had a CT scan that showed her PDA mostly closed (echo today shows it slightly open but that’s OK). The PDA closing is …
Day 12 – Still hanging in there
Sorry for the lack of updates. It’s been crazy busy and there hasn’t been much change. We’re still waiting for the ductus to close. The latest echo couldn’t give us any hard numbers on if it’s getting closer to closing or not so we just hang out and try to be patient. Kate is working …
On to Day Four
Just a quick update today. We’re on day 4 and things are still holding steady! Kate has been off of the drug to stop the ductus from closing for over 72 hours now and things are still looking good. We are very much in a wait and see mode right now. There was a second …
Meet Baby Kate
Yesterday, April 17th, 2019 at 6:48pm Kate Bernadette Royer was born! This is Dave’s quick brain dump about 24 hours after birth. Kate is at the Cardiovascular Intensive Care Unit at Children’s Hospital in Minneapolis. Audrey was a rock-star during birth. We were at the hospital for about 1.5 hours before it was time to …