Still Taking Small Steps

We are 147 days into our hospital stay. It’s been 32 days since transplant and 16 days since the RVAD came out. Kate’s making progress. It’s slow progress but we’ll take it. We were down to 3 IV pumps at one point. We had to back-track a bit due to Kate’s fluid balance still being way too far on the positive side. Unfortunately the big issues Kate is facing seem to primarily be from poor care decisions made by the ICU team after surgeries. 

I’m not going to complain about problems today but share some of the fun items. 

We’ve been able to go for more wagon rides lately! Kate has taken a few assisted steps again. Kate’s sitting up lots. As I write this, she just got done sitting up on her bed for at least an hour and a half. She’s being a rock star weaning off her pain meds. The past few days she’s been crazy tired due to changes but in the awake times she is really cute and getting back to herself. We still haven’t celebrated Christmas yet. If it’s a good weekend, hopefully we can do that this weekend. 

Audrey and I have gotten back into a regular schedule. For the most part, we get up before 6am, Audrey heads to the Hospital, getting there before 7am when shift-change starts. I start working around 7am until about 2pm or 2:30pm.  We’re at the hospital until 8pm to 8:30pm then we head home for a tiny bit of R&R then off to bed. It’s exhausting but we’re making it work. 

It’s frustrating that we are still here at the hospital working on recovery. We certainly didn’t see recovery as taking us down this path. That said, we are seeing progress all the time. It may be slow but it’s progress. We’re happy Kate has her new heart and she’s on the path to recovery.

As always, thanks to everyone who is able to help us. From food deliveries to food delivery cards to words of support and everything else. We’re excited and hopeful to be able to get Kate out of here sometime in the future…whenever that future is.

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