Well we’re back! Today we are back at Children’s Hospital. This time it’s for another Heart Cath. to check the internal pressures in the heart.. This was planned for a while and it’s been a year since Kate last had one. I’m writing this as Kate is back in the OR so I don’t know …
Category Archives: Latest News
We’re Out!
Once again, the we’re out message comes later than the we’re back in message! We have been enjoying being out! We were discharged mid-day on Friday and got to go home. Kate is still sore and very cuddly but in good spirits. We went out to see a friend on Friday and went for a …
Post-surgery update
Kate had her surgery to place a feeding tube yesterday. The surgery went well with no issues and no complications. The tube is in and works with no problems so far. It’s been a tough day and a half so far though due to Kate not being able to eat or drink anything for a …
Back we go
Just a quick update for anyone following our saga with Kate’s health. Tomorrow morning, Wednesday, we head back to the hospital after 7 months for Kate’s 4th procedure. This time we are getting a feeding tube put in. She’s not eating enough and we need this to help supplement her eating to hopefully get her …
2019 Update – What a Year!
No news this time, just an update. Sorry it’s been quite a while since our last update. Luckily we have been mostly in normal baby world since then. Our day to day time is spent dealing mostly with normal baby stuff like eating, sleeping and playing. Kate’s just a baby with a backpack! We’re still …
Back home and a new normal
Last we talked, we were in-patient and had been working through the heart transplant discussion. A lot has changed since then and we wanted to give you an update. We were discharged from the hospital last Thursday, based on Audrey’s awesome persistence in pushing but also due to the great work from our transplant team …
And now we have a path…
Over the weekend we had another echo. The Sildenafil (Viagra) didn’t have any effect. We are now out of options other than proceeding down the path to look at a heart transplant. This is scary, frustrating, devastating and a relief, all in one. Within the next day or two we should be officially on the …
And now more news
Today’s update is going to be a bit shorter and to the point. Yesterday, Thursday, we got the news about the next steps. Currently we are ramping up the Sildenafil (Viagra), trying to see if that will have an effect. On Saturday or Sunday we will have another echo to see if that has had …
Back at the hospital
Well you hopefully read Monday’s update. We had a heart catheterization. yesterday to gather more data and try and determine next steps for to deal with Kate’s hart issues. The cath. went well and they got lots of data. The aortic arch they repaired back in May during our original visit is doing great with …
No news is good news….and now, news
It’s been a little over 2 months since our last update, just after we got out of the hospital. It’s been a fun whirl-whirl adventure in the world of baby! Today we are back in the hospital, but before we get to that, let’s catch up on life. Since we left the hospital, we’ve been …