About a week ago, I contacted Boston Children’s Hospital for a second opinion. They are the world leader in hypoplastic left heart syndrome (HLHS), and do many things that other places don’t, such as fetal surgery. Monday, they finally received all of our medical records. A doctor, Dr. Friedman, reviewed the results and actually had …
Category Archives: Latest News
Audrey’s First Entry
Please read Dave’s Journal Entry first. This entry assumes that you have already read his. Thanks for coming to our website. If you know me, you probably know that I don’t share personal things easily. This situation is no exception. Please know that I welcome any questions you have, at any time. Even if I …
A Turn of Events
It’s been a wild week. Last Thursday Audrey and I learned that our little one likely has a Congenital Heart Defect. Specifically, she has an issue called Hypoplastic Left Heart Syndrom, or HLHS. HLHS is a situation where the left side of the heart is underdeveloped and can’t function properly. There is no danger right …
Brave Bear Royer’s Health Journey
Our 20 week ultrasound was not a happy day full of pretty pictures, but instead the start of a long journey to address a critical congenital heart defect. Follow along by reading our Journal. These journal entries make the most sense if you read them all, from oldest to newest. If you haven’t already, we encourage …